From Patients to Researchers: How Patients Helped Define Long COVID
“Researchers analyzed 2.8 million tweets from 2020 to 2022 to better understand how people came together to define, research, and share information about long COVID.”
“Researchers analyzed 2.8 million tweets from 2020 to 2022 to better understand how people came together to define, research, and share information about long COVID.”
“The authors discerned four distinct categories or themes to combat misleading information: educational, debunking, algorithmic, and regulatory responses.
“Effective science communication isn’t just about explaining research clearly—it also requires making expertise easier to recognize.”
“When users can actively shape what they see, such as on Reddit, they are actually less isolated. It’s platforms with hidden, unchangeable algorithms, like Facebook and Twitter (editor’s note: now X), that lock us into segregated bubbles.”
Linguistic and cultural factors come into play as science communication takes to social media.
How forward facing social media, such as YouTube, can be a gateway for anti-scientific misinformation and conspiracy theories.
Science YouTube videos that get more likes and are mobile phone friendly could reach more viewers.
Science influencers rely on identity language to nurture their communities. But this language inadvertently polarizes science.
Zoos use YouTube for science communication and choose which animals and educational facts to include, whilst still being entertaining.
This article delves into science communicators’ impact on social media, spotlighting John Green’s #PatientsNotPatents campaign.